Grandkid pictures

Keira

Caleb

Violet

Sadie

Daylon

Elizabeth

I tried to send an email out to my parents and siblings of the DLC grandkids but it wouldn't send. I'm having to resort to blogger! Sorry for the inconvenience!

Big News

Well, Brian and I have decided to come out with our big news! There's a Bone Marrow Transplant program at the University of Minnesota that was FDA approved in November. They've opened the program up to include Junctional EB kids 25 and under. We've been working with them and it now seems that Daylon is being considered a candidate for the transplant! We found out last Friday that Caleb is his IDENTICAL match!!! So far things look really good and we're so excited to have some hope for our sweet little boy! We have a consult in Minnesota on the 25th so we'll keep you all posted!

Welcome!

With enough pressure from our friends and family, we've finally decided to join civilization and start a family blog! Just like most blogs, we'll take you along with us for the crazy ride of our life! There are the occasional interesting occurrences raising five young kids five and under! Buckle up!

I just got some pictures back from Keira's and Caleb's Birthday party. We had a few people interested in seeing them so we decided to start there. Things have been a bit hectic around here the past few months so Keira and Caleb had a joint Curious George themed party. Keira turned 5 (if you can believe it!) and Caleb turned 3! The kids had a good time so our mission was accomplished! Brian even made an appearance as "The Man in the Yellow Hat". It was such a hoot! 10 bonus points for Brian! I can't believe he agreed to it! Grandma snagged a couple of candid pictures of the kids during a cotton candy sugar high! The kids were so ready to crash by the end of the day !